Nationwide Survey of Patient Knowledge and Attitudes towards
Human Experimentation Using Stem Cells or Bee Venom Acupuncture for Parkinson's
Disease
J Mov Disord, 2014 Oct;7(2):84-91. doi: 10.14802/jmd.14012.
Epub 2014 Oct 30.
OBJECTIVE:
Stem cell treatment is a well-recognized experimental
treatment among patients with Parkinson's disease (PD), for which there are
high expectations of a positive impact. Acupuncture with bee venom is one of
the most popular complementary and alternative treatments for PD. Patient
knowledge and attitudes towards these experimental treatments are unknown.
METHODS:
Using a 12-item questionnaire, a nationwide survey was
conducted of 963 PD patients and 267 caregivers in 44 Korean Movement Disorders
Society member hospitals from April 2013 to June 2013. The survey was performed
by trained interviewers using conventional methods.
RESULTS:
Regarding questions on experimental treatments using stem
cells or bee venom acupuncture, 5.1-17.7% of PD patients answered questions on
safety, efficacy, and evidence-based practice incorrectly; however, more than
half responded that they did not know the correct answer. Although safety and
efficacy have not been established, 55.5% of PD patients responded that they
were willing to receive stem cell treatment. With regard to participating in
experimental treatments, there was a strong correlation between stem cell
treatment and bee venom acupuncture (p < 0.0001, odds ratio = 5.226, 95%
confidence interval 3.919-6.969). Younger age, higher education, and a longer
duration of PD were all associated with a correct understanding of experimental
treatments.
CONCLUSIONS:
Our data suggest that relatively few PD patients correctly understand the safety and efficacy of experimental treatments and that PD patients are greatly interested in new treatments. We hope that our data will be used to educate or to plan educational programs for PD patients and caregivers.
Our data suggest that relatively few PD patients correctly understand the safety and efficacy of experimental treatments and that PD patients are greatly interested in new treatments. We hope that our data will be used to educate or to plan educational programs for PD patients and caregivers.
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